Sunday, March 20, 2016

Sunday, March 13, 2016

House Passes Childhood Cancer Research Proposal 85-10

A proposal to make funds available for childhood cancer research passed the Oklahoma House of Representatives on March 9th, by a vote of 85 to 10 and now heads to the State Senate. The funds would come from earnings from the Tobacco Settlement Endowment Trust, or TSET. 

House Joint Resolution 1045, if approved by the state Legislature this spring will go to a vote of the people this November. If approved by voters, it will require the TSET board to set aside at least $1 million for pediatric cancer research annually. 

The resolution must pass out of Senate committee within the next four weeks. 

House Joint Resolution 1045 was filed by Rep. Jason Nelson, R-Oklahoma City, and Rep. Todd Thomsen, R-Ada, in January. Sen. Kim David is the senate sponsor. Rep. Sean Roberts and Sen. Eddie Fields are cosponsors. 

Resolution Explains Childhood Cancer Research Need

House Resolution 1043 was adopted by the Oklahoma House of Representatives March 9, 2016, and was filed with the Oklahoma Secretary of State the next day. 


2nd Session of the 55th Legislature (2016)

RESOLUTION 1043                                                                  By: Nelson and Thomsen


A Resolution expressing certain belief; encouraging
partnerships that improve effectiveness of treatments
for childhood cancer and reduce negative effects of
such treatment; and directing distribution.

    WHEREAS, cancer is the leading cause of death by disease in children in the United States; and

  WHEREAS, approximately one in 285 children in the United States will be diagnosed with cancer before their 20th birthday; and

    WHEREAS, the incidence of childhood cancer is on the increase, averaging 0.6 percent increase per year since the mid 1970s, an overall increase of 24 percent over the last 40 years; and

Twice A Cancer Mom

By Shannon Bollenbach, March 12, 2016 -- As tomorrow approaches this momma can't help but be overcome with mixed emotions, tomorrow Jase will finish up his chemotherapy. 

When I told Jase "no more chemo baby," he says " Yay momma no more boo boo, no more pokes, no more bandaids." Hearing the excitement in your 2 year olds voice is worth a million dollars. 

This has been our lives the past 14 months with Jase, the past 7 years between both boys. 

Jase has grown to love the nurses, doctors, and staff at both the hospital and JEC clinic [Jimmy Everest Center at OU Children's Hospital]. Instead of talking about his friends at school or neighbor kids he talks about Dr. Sims, Dr. McNall, Will, Heather Kelly, Alma, and Becky just to name a few. 

The best part of this whole journey has to be how much Jase has grown and became this intelligent little person. There isn't a soul who doesn't know him, if so he will gladly introduce himself and tell you all about it. He has a contagious smile that will light up the room. 

He is one of the brightest two year olds I know, he can say his entire alaphebet, count to ten, and tell you exactly what he wants. 

The once shy little boy is now are inquestive social butterfly. We may be finished with chemo but Jase still has weekly appointments, monthly scans, and lab work on a regular basis this will never end. Life as Jase knows it is about to change.  

As for momma, I've  never been so damn terrified in my life, just the thought makes me sick to my stomach. After Kaden's cancer returning so aggressively there is a high chance Jases will also, it may be 6 days after treatment or 60 years we will never know, all we can do is watch for the signs and monitor him closely.  

I know stressing isn't the answer, I know I'm supposed to leave it to God but in reality I'm a cancer mom, of 2, that knows the reality of this horrible disease all too well. 

What's next, we are going to live life this summer like never before many lake trips, vacation, and family time. 

Jase has requested a party with balloons and presents he can unwrap so a party Jase will get. We will be celebrating the end of chemo, and a little thank you to all the nurses and staff that have cares for Jase along the way.

Tuesday, March 8, 2016

First Major Vote on Childhood Cancer Research Resolution Set Wednesday Afternoon

March 8, 2016 -- House Resolution 1043 describing the need for more research into improved therapies to fight childhood cancer was introduced by Reps. Jason Nelson and Todd Thomsen earlier today.

HR1043 was filed 24 hours before House Joint Resolution 1045, the constitutional amendment directing funds from the Tobacco Settlement Endowment Trust, is due to be considered by the Oklahoma House of Representatives. 

Rep. Nelson said both resolutions are scheduled to be voted on by representatives Wednesday afternoon. 

"HJR1045 and HR1043 are scheduled to be heard tomorrow after 4:30 p.m.," Nelson said. "We plan to hear HR1043 first which describes the need for more research funding and then hear HJR1045, the constitutional amendment, which is the legislation that will go to a vote of the people this year if passed by the Legislature."

Nelson said anyone interested in showing their support for the pair of resolutions are welcome to come to the House Gallery at the State Capitol by 4:30 p.m., Wednesday, March 9, 2016, to watch the proceedings. The House session is also streamed live on the Oklahoma House of Representatives website for those who cannot come to the Capitol.